The above picture is of my son Justin when he was just 2 days old.
He was 1 day old when I got the news that something was wrong. He was a relatively healthy 9 pound baby boy however, he had not had his 1st bowel movement within the normal time frame and he was having some trouble keeping milk down. I was devastated when I heard the words Hirshprung's Disease and surgery used in the same sentence along with my newborn's name in it.
As the doctors spoke I started to cry because despite them saying it was nothing I did during the pregnancy I felt as if I had failed at the 1st task given to me as a mother which was to keep my child safe and healthy. To know I had to not only see my son get through this ordeal but also keep myself calm and well was kind of hard because if I got sick that was it and I knew it. I had a c-section and let me tell you when I say the recovery was NOT an experience I'd wish to repeat. The medications they gave me during the c-section was just AWESOME because I did not feel a dang thing other than some pressure. I was just laughing and making jokes as if there were not strangers in my stomach poking around trying to get this little baby out of me. Let me just say once those medications wore off ... well honey hush!
Justin had his 1st surgery at 3 days old. He did well as expected and came home about 4 days later. I was so happy that I had my child home with me. This was the beginning of a journey at that time I wasn't sure how to handle. My son had a colostomy on his side for him to poop basically. I had to get to know how to clean around and keep it clean and free of infections. I did this for the 1st 6 months of his life. After 6 months he had another surgery which repaired his colon and closed the colostomy. They also did a bonus and removed his appendix just as precaution. During my pregnancy, his birth, his surgeries I prayed and kept faith and hope that all will be well. Even now I continue to pray for him daily.
Justin has had some delays and struggles in his bathroom usage even up to this day and he is 11 now, but I am not giving up hope for him to overcome this hurdle 100 percent. I have over the years been seeking different methods and persons to assist in this quest. We're getting there. :-)
Even though I'm telling the VERY SHORT version of his story, I just wanted to share a little bit to say keep praying, keep faith and hope in your heart. To persons dealing with Hirshprung's Disease or any other ... try not to get discouraged and try not to give up hope that things will get better. Justin is my miracle and I will forever be grateful for him.
*May the good Lord guide me through the pre-teens and teenage years though because these days ... it's like woah lol.
Justin Finley :-)
Here are a few links from the local newspapers that caught my attention
Good News 242
Come on 242 Let's Share Our Good News!
Or you can